Tourettes Action is the UK’s only national charity dedicated to supporting individuals with Tourette syndrome and their families. Our staff, volunteers and supporters are engaged and energised in driving forward our mission. Everything we do is grounded in our community’s needs and informed by both the voices of our community and research-based evidence.

Tourette syndrome (TS) is a genetically determined neurological condition. It affects one school child in every hundred and is more common amongst boys. Over 300,000 children and adults are living with TS in the UK. The key features are tics – involuntary sounds and movements, which must be present for at least 12 months to meet the diagnostic criteria. Up to 85% of people with TS will also experience co-occurring conditions and features which might include ADHD, OCD and anxiety.

Our Vision

We want a world where people with Tourette syndrome are: accepted, supported and embraced. This is a world which enables people with the condition to reach their full potential.

Our Mission

• We will support and empower people living with Tourette syndrome, and their loved ones, through comprehensive advice and support.
• We will campaign to improve services, raise awareness and understanding of Tourette syndrome, and work to eliminate the stigma surrounding it.
• We will assist and promote essential research into Tourette syndrome.